This list is divided into two sections: Organizations Represented by People on the Advisory Board and Other Agencies Committed to End-of-life Care. Each list is organized alphabetically.
Organizations Represented by People on the Advisory Board
- Center for Aging, NYS OMRDD
- Center for Disabilities Studies and Community Inclusion, University of Southern California
- Center for Excellence in Aging Services, University at Albany
- Center for Intellectual Disabilities, University at Albany
- Center for Life’s Journeys
- Center for Practical Bioethics
- Center for Rights of Parents with Disabilities of the Colorado Cross-Disability Coalition
- College of New Rochelle
- Creative Living Options, Inc.
- Hospice Foundation of America
- Marist College
- Massachusetts Department of Mental Retardation
- National Hospice and Palliative Care Organization
- New Jersey Health Decisions
- NYSARC, Inc.
- Oklahoma Department of Human Services, Aging Services Division
- Oklahoma Department of Human Services, Developmental Disabilities Services Division
- Orange Grove Center, Chattanooga, TN
- ResCare, Inc.
- Volunteers of America of Oklahoma
- Volunteers of America, Inc.
Other Agencies Committed to End-of-life Care
Many brochures for widowed persons and a guide, “Customs of Bereavement,” for cross-cultural assistance.
601 E Street, NW
Washington, DC 20049
Provides information on everything related to being over 60. Recommendations and referrals to such things as meals on wheels, housekeeping services, personal care and entitlements.
1500 Pelham Parkway South
Bronx, NY 10461
Provides basic information about transmission. Referrals to medical services, counseling and support groups.
Provides information and educational materials about ALS (Lou Gehrig's Disease). Referrals to physicians, support groups and drug trials.
27001 Agoura Road, Suite 150
Calabafafes Hills, CA 91301-5104
Provides general information on the disease. Referrals to local chapters for specific services.
919 N. Michigan Avenue, Suite 100
Chicago, IL 60611
Leader in and advocate for programs in patient care, aging research, professional and public education and public policy.
770 Lexington Avenue
New York, NY 10021
(212) 308-1414 Fax: (212) 832-8646
2175 K Street, NW, Suite ;820
Washington, DC 20037
Publications include list of materials and other resources on people with intellectual disabilities, dying, death and grief support.
1010 Wayne Avenue, Suite 650
Silver Springs, ME 20910
Call Choice In Dying
We have trained counselors who can help you navigate the health care system and sort through the information you are receiving from health care providers about end-of-life treatment decisions. If you hear something that is confusing at (800) 989-WILL. We can help you understand the issues important to your situation.
Answer any question related to cancer and cancer treatment. Referrals to hospice, home care and support groups.
19 offices across the country
An interdisciplinary team engaged in research, advocacy and education activities to improve the care of the dying and their families.
George Washington University
Advocates change in medical care for terminally ill people and insists that meaningful reform must include legislation of assisted dying.
Supported by a grant from the Robert Wood Johnson Foundation, the EPEC Project is designed to educate physicians about end-of-life care. The website proves a core curriculum, an extensive resource guide of books and audiovisuals.
Institute for Ethics
American Medical Association
515 North State Street
Chicago, IL 60610
Resource center with online caregiver group, clearinghouse, research and publications for caregivers and those working with them.
690 Market Street, Suite 600
San Francisco, CA 94104
A search engine with vast resources on key issues in terminal illness, hospice, dying, death, grief and bereavement.
Provides general information on Hospice Care. Referrals to hospice across the country.
190 Westbrook Road
Essex, Conn 06475
2001 South Street, NW, Suite 300
Washington, DC 20009
Resources for patients, caregivers, survivors. Provides links and provides information on rules that govern Medicare coverage of and payment for hospice care.
401 Bowling Avenue, Suite 51
Nashville, TN 37205
A national interdisciplinary coalition representing many organizations and providing education and advocacy for improved care of dying people. Extensive resources directory.
Provides information on organ donation and a registry of people who wish to donate organs.
Comprehensive database of home care and hospice agencies and information on how to choose a provider.
228 South Street, SE
Washington, DC 20005
Referrals to professional social workers nationwide.
750 1st Street, NE, Suite 700
Washington, DC 20002
(800) 638-8799 ext. 555
National Center for Death Education, Mount Ida College
Resource directory of books, audiovisual materials.
777 Pelham Street
Newtom, MA 02159
Ideas for supporting dying people at home and their careers and helping them to arrange funerals.
20 Heber Road
London, N@2 6AA UK
Supports caregivers and offers bereavement programs.
10605 Concord Street, Suite 501
Kingston, MD 20895
Includes the full report of the success of the Medicare hospice benefit, recent articles, an explanation and definition of trauma/disaster services related to hospice care and the agencies that supply them, four grief and bereavement guides, and information about NHPCO.
1700 Diagonal Rd. Suite 625
Alexandria, VA 22314
Hospice Helpline (800) 658-8898
Provides general information about kidney and urological disease as well as information on how to become an organ donor and free organ donor cards. Referrals to local affiliates for services.
30 E. 33rd Street
New York, NY 10016
Referrals to all kinds of support groups nationwide.
Project on Death in America
Open Society Institute
Extensive resource directories of agencies, services, publications and facts.
400 West 59th Street
New York, NY 10019
Links, extensive reading list, articles.