Resources

Help for Caring

Help for Caring Cover“Help for Caring for Older People Caring for an Adult with a Developmental Disability” is a 137-page manual for area agencies. Chapters include “Why Should Older Carers be Targeted for Assistance?,” “Organizing Your Community,” “Developing Your Agency’s Initiative,” “Cultural Aspects to Working with Carers,” and “Key Issues in Working with Carers.” The document also contains a number of appendices of resources and sample materials.

Aiding Older Caregivers

Cover to the Aiding Older Caregivers toolkitThis 55-page toolkit, “Aiding Older Caregivers of Persons with Intellectual and Developmental Disabilities,” PDF document is an accumulation of materials, resources and best practices in the topic, produced as a direct result of three years of collaboration-building workshops in 33 different states. Sections include Demographics, Collaborations, Legislation, Best Practices, References, Resources, and Quick Reference Fact Sheets.

The Frontline of Learning Disability (Spring, 2006)

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The Frontline of Learning Disability (Winter, 2005)

Cover of Winter 2005 Frontline Feature: Dementia

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Web sites

Sites are listed alphabetically.

Administration on Developmental Disabilities

Main website for the U.S. Administration on Developmental Disabilities

ARC of the United States

This is the main portal site from the ARC of the United States, an organization of and for people with mental retardation and other developmental disabilities and their families. A number of useful links are provided as well as an on-line store for books and videos and information on policy issues, conferences, and news items.

Operated by the ARC of the United States and partners, this site provides state by state information and sites related to accessibility, Americans with Disabilities Act, Assistive Technology, Health and Medical Issues, and other sites users and providers are likely to benefit from.

Association of University Centers on Disabilities (formerly AAUAP)

The site of the Association of University Centers on Disabilities (formerly AAUAP). Includes state by state listings and links for research centers.

Australian Center on Quality of Life

Operated by the Australian Center on Quality of Life, this site offers links to instruments, publications, and bibliographies on quality of life issues.

Developmental Disabilities Internet Resource Collection

An annotated listing of credible, relevant, useful, age-generic resources on developmental disabilities

Family Village

A web portal to a "global village" of information, resources, and communication opportunities for persons with cognitive disabilities and for families and providers.

Dementia Services Development Centre at the University of Sterling

This is the site fo the Dementia Services Development Centre at the University of Sterling. The University of Sterling offers graduate courses in dementia care and the Center page has links to U.S., European and other international research and service sites.

Health Information

This site was developed to improve health care and training of providers in California. It offers medical care information, physician-to-physician consultation, publications and cd-rom and video based training programs.

Mental Health and Learning Disabilities

The Mental Health and Learning Disabilities Portal aims to be a worldwide, interactive, personalized forum for the sharing of information by people whose lives are touched by mental health problems and/or learning (developmental) disabilities. This includes people with mental health problems or learning disabilities, their parents, friends, carers, educators and therapists, as well as researchers, legislators and volunteers.

National Down Syndrome Society

The site of the National Down Syndrome Society has an on-line bookstore, information on education and research programs, and information and referral functions. Web links include sites offering information in Spanish, information on support groups, and links to other persons with Down Syndrome.

New York State Developmental Disabilities Planning Council

The New York State Developmental Disabilities Planning Council is a federally funded state agency and is responsible for developing new ways to improve the delivery of services and supports to New Yorkers with developmental disabilities and their families.

The Council has funded two geriatric assessment clinics at the Institute for Basic Research on Staten Island and at the Strong Center for Developmental Disabilities at the University of Rochester. Copies of reports, videos, and cd-roms on aging, developmental disabilities, and dementia are available from the Council.

Rehabilitation Research and Training Center on Aging with Developmental Disabilities (at the University of Illinois at Chicago)

This site maintained by the Rehabilitation Research and Training Center on Aging with Developmental Disabilities (at the University of Illinois at Chicago) has links to

Center for Excellence in Agng Services